This blog came out of our experiences. of Paul's End of Life Care, we are trying to say goodbye to Paul and come to terms with the trauma of being denied the right to express grief or have the love we felt for Paul acknowledged The trauma of this was doubly hard for Tony (please read his story). It was as if being a father of a dying son was less than- his grief assumed to be not as important as that of the mother.. Have other dads out there found this to be true? #FATHERS4JUSTICE
Paul's mum used her status of named next of kin maliciously, even today she denies not only Tony's rights as Paul's next of kin but the very existence of the love he felt for his son and the love Paul felt for his father.
Paul's right to be surrounded by love in his last minutes was also not fully realised and for Tony this is the most difficult aspect to come to terms with.
We want to be heard, even if we need to shout it out!! Both Paul and Tony deserve this. We fought hard to be heard by the hospital who (eventually) listened and have changed their policy on how they respond to named next of kin - we will share this with you later.
In telling our story, we are not only reaching out for understanding and acknowledgement but we are reaching out to others out there who have experienced something like this - tell us your story and we will make room on here to share it, we can help and support each other.
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